preparing for the future is about creating opportunities, building support, and ensjring the individuals are at the centre of everiy ddecision

Planning for the Future

meaningful life. At the same time, adults with FVSD have their own hopes, goals, and plans for the future, and should remain at the centre of decisions about their lives.

Planning for the future is not about expecting the worst. It is about building confidence, identifying opportunities, and putting practical arrangements in place gradually over time. Small steps taken today can make a significant difference in the future.

Every person's journey is different. Planning may include thinking about health, housing, education or employment, finances, relationships, community participation, and the support that may be needed as circumstances change. Because the oldest recognised adults with FVSD are only now reaching later adulthood, there is still much to learn about ageing with the condition. This makes forward planning and continued research especially important.

To help families and adults begin these conversations, we have developed practical resources that can be completed over time. These are designed to support planning in a positive, person-centred way, helping individuals record what matters to them, identify future goals, and build a secure foundation for adult life.

good planning today can provide stability and confidence for tomorrow

Planning for the future is something that most adults think about at different stages of life. For adults living with Fetal Valproate Spectrum Disorder (FVSD), planning ahead can help provide greater security, promote independence, and ensure that support continues to reflect the individual's own wishes and aspirations.

For many families, these conversations can feel difficult. Parents and carers often wonder what the future may hold and how to ensure that the person they support continues to live a safe, fulfilling, and