​​While every individual follows their own path, many young people with FVSD continue to require support beyond childhood. Difficulties with communication, executive functioning, learning, mental health, physical health, social understanding, or daily living skills may continue into adult life and can affect the transition process.

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What is Transition?

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Transition refers to the process of preparing a young person for adult life. It involves gradually moving from children's services to adult services and supporting the development of skills needed for greater independence.

Transition may involve:

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• Leaving school or college

• Moving into further education, training, or employment

• Transferring from paediatric to adult healthcare services

• Developing independent living skills

• Building social networks and community connections

• Accessing adult support services

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Successful transition is usually a gradual process rather than a single event.

Challenges During Transition

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Many young people with FVSD experience challenges during this period.

These may include:

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• Anxiety about change and uncertainty

• Difficulties adapting to new environments

• Loss of familiar professionals and support systems

• Increased expectations of independence

• Executive function difficulties affecting organisation and planning

• Difficulties understanding complex information or making decisions

• Social and emotional challenges

• Concerns about future opportunities

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For some families, support that was previously available through school or children's services may become more limited after education ends.

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Preparing for Adult Life

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Planning ahead can help make the transition smoother.

Areas that may be important to consider include:

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• Education and training opportunities

• Employment goals and aspirations

• Independent living skills

• Travel and community access

• Healthcare management

• Financial skills and budgeting

• Social opportunities and friendships

• Ongoing support needs

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Transition planning should recognise both an individual's strengths and the areas where support may continue to be needed.

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The Importance of Independence

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Independence looks different for everyone.

Some individuals with FVSD may live independently, attend university, or maintain employment with little support. Others may require varying levels of assistance throughout adulthood.

The goal is not necessarily complete independence but helping each individual achieve the greatest level of autonomy, confidence, and quality of life possible.

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Supporting the Family

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Transition can be a significant period of adjustment for parents and carers as well as for the young person themselves.

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Families may have concerns about:

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• Future support arrangements

• Adult services

• Employment opportunities

• Safety and vulnerability

• Social inclusion

• Long-term wellbeing

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Open communication, early planning, and access to appropriate support can help families navigate this important stage.

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Looking Forward

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Transition is not simply about leaving childhood behind. It is about building a fulfilling adult life that reflects the individual's strengths, interests, aspirations, and support needs.

With understanding, appropriate planning, and the right support, many young people with FVSD can continue to develop skills, pursue meaningful opportunities, and participate actively in their communities.