Darkside of Medicine
Living as an Adult with FVSD
Children with Fetal Valproate Spectrum Disorder (FVSD) grow up to become adults with their own ambitions, interests, talents, relationships, and aspirations. While FVSD may continue to influence aspects of daily life, it does not define who a person is or what they are capable of achieving.For many adults, living with FVSD is about far more than managing a diagnosis. It is about building a life that reflects their own goals, making choices, developing independence, participating in their communities, and having opportunities to c
ontinue learning and growing throughout adulthood.
Every adult with FVSD is different. Some people live independently, pursue higher education, maintain employment, and require little ongoing support. Others may continue to experience challenges with communication, executive functioning, learning, physical health, mental wellbeing, or everyday living, and may benefit from varying levels of support. Support needs may also change over time.
Many adults with FVSD and their families describe increasing health challenges as they get older, including fatigue, pain, mobility difficulties, endocrine, neurological, or other physical health concerns. At present, there is limited research exploring health outcomes across adulthood, and more long-term studies are needed to understand these experiences.
The aim of support should not be to define what an individual cannot do, but to recognise their strengths, understand the challenges they experience, remove unnecessary barriers, and provide opportunities for them to achieve their own potential. Woth the right support for their evolving needs this ensures greater opportunities to enable them to live fulfilling lives.
Adulthood is not simply the end of childhood. It is a new stage of life, bringing opportunities for independence, self-determination, relationships, meaningful occupation, and participation in society. With understanding, appropriate support, and inclusive communities, many adults with FVSD continue to develop new skills, pursue their interests, and make valuable contributions to the lives of those around them.
Our Resources section contains practical information to support adults with FVSD, their families, carers, employers, educators, and professionals.