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Shared Decision Making

Shared decision-making is a partnership between patients, families, and healthcare professionals in which decisions about care and treatment are made together. It recognises that while healthcare professionals bring clinical knowledge and medical expertise, patients and families bring lived experience, personal values, daily observations, and an understanding of how illness and treatment affect everyday life.

Good shared decision making means people are given clear, honest, and understandable information about their condition, treatment options, possible benefits, risks, side effects, uncertainties, and alternative approaches. It also means patients are given the time and support needed to ask questions, express concerns, and consider what matters most to them before decisions are made.

This approach is especially important in long-term and complex conditions, where treatment choices may affect quality of life, independence, family life, mental wellbeing, pregnancy, or future health. Patients and families are often the first to recognise subtle changes, side effects, or patterns that may not be immediately visible during medical appointments. Their observations and experiences are therefore an essential part of safe and effective care.

Shared decision making is not about patients carrying the responsibility alone, nor is it about simply agreeing with professional opinion. It is about respectful collaboration, transparency, informed consent, and ensuring that people feel heard, valued, and involved in decisions affecting their own bodies and lives.

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When shared decision-making works well, it can improve trust, strengthen communication, increase understanding of treatment, support safer medication use, and help people feel more confident and empowered in their care. It also helps reduce the risk of misunderstandings, overlooked concerns, and treatment decisions that may not fully reflect the individual’s needs, circumstances, or priorities.

Every patient has the right to ask questions, seek further information, request clarification, involve family or advocates where appropriate, and take an active role in decisions about their healthcare. Listening to lived experience is not separate from good medicine  -  it is an important part of it.

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